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• Cover
• Halftitle
• Title
• Copyright
• Contents
• List of figures and tables
• Acknowledgements
• Introduction: setting the scene
• Part 1
• 1 ‘Patients’, ‘clients’, ‘service users’, ‘survivors’ and ‘carers’: backwards, forwards and places in between
• Introduction
• Terminology
• Involvement and participation: the Disability Rights Movement
• Consumerist underpinnings
• Conclusion
• Key questions for reflection
• 2 Bleeding boundaries: homogeneity and heterogeneity in user involvement
• Introduction
• Service user and carer involvement: the importance of belonging
• Homogeneity and heterogeneity – acknowledging experts by experiences or putting us into boxes?
• Carer, service user, professional, academic: shifting and intersectional identities
• Conclusion
• Key questions for reflection
• 3 Visibility and invisibility in service user and carer involvement
• Introduction
• Recognition and involvement in health and social care
• Effective barriers to involvement
• Affective barriers to involvement
• The interaction between effective and affective barriers
• Conclusion
• Key questions for reflection
• 4 International agendas: mirrors and mirages
• Introduction
• Globalisation
• ‘Involvement’ and international contexts
• Involvement and marginalised communities: international perspectives
• Examples of ‘involvement’: international contexts
• The ‘welfare’ ethos
• The importance of the role of professionals in agencies and communities
• Safeguards and risk and impact of privatisation
• Conclusion
• Key questions for reflection
• Part 2
• 5 ‘This could be Rotterdam (or anywhere)’: working in partnership with service users and carers on an international exchange programme
• Introduction
• Rebuilding health and social care within an international context
• Social work
• The global agenda for social work and social development
• The international exchange programme
• Conclusion
• Key questions for reflection
• 6 Exploring resilience and wellbeing: crossing the boundaries between service user and practitioner in mental health
• Introduction
• Wellbeing
• Resilience
• The Inpatient Care Forum
• Working in health and social care: resilience and practitioners
• Interdisciplinary Preceptorship Programme (IPP)
• Discussion
• Conclusion
• Key questions for reflection
• 7 Arts-based practice: learning from survivor artists
• Introduction
• Arts-based practice in health and social care
• The Survivor Arts Project
• The value of adopting a more creative approach
• Survivor artists’ perspectives
• The art of recovery
• Art: the process
• Recovery: the journey
• Mental health services
• Conclusion
• Key questions for reflection
• 8 Building voices: challenging stigma and constructing identities
• Context
• Role allocation and change
• Limitations imposed around roles
• Expectations towards service users, carers and patients as a result of role allocation
• Stereotyping and stigma
• Attitudinal link
• Holding onto yourself
• Conclusion
• Key questions for reflection
• 9 Conclusion: future dilemmas and directions
• We’re not there yet!
• Doing ‘involvement’
• Shared and differential experiences
• Building practices which build voices
• Conclusion
• Notes
• References
• Index